The 3C's Cavernoma Support Group is a local group that meets together in Albuquerque and Santa Fe New Mexico to share their experiences in life with Cerebral Cavernous Malformations (CCM).
CCMs are blood vessel malformations that can occur sporadically or through familial heredity. The most common form of CCM is inherited from a parent having the mutated gene. The illness can be traced back at least sixteen generations to the first Hispanic settlers in the area now know as the Southwest. It is estimated that 1 out of 200 in the Southwest carry the illness, most are asymptomatic. The sporadic forms are found in 1 out of 500 people worldwide. The illness is not well known in the medical community. CCMs can be formed anywhere on the body, but are usually found in the brain or spinal cord. They can cause headaches, nausea, sudden changes in hearing or vision, seizures, tingling in the limbs, paralysis, can be crippling and possibly lead to death.
The 3C's Cavernoma Support Group is a local group that meets together in Albuquerque and Santa Fe New Mexico to share their experiences in life with Cerebral Cavernous Malformations (CCM).
CCMs are blood vessel malformations that can occur sporadically or through familial heredity. The most common form of CCM is inherited from a parent having the mutated gene. The illness can be traced back at least sixteen generations to the first Hispanic settlers in the area now know as the Southwest. It is estimated that 1 out of 200 in the Southwest carry the illness, most are asymptomatic. The sporadic forms are found in 1 out of 500 people worldwide. The illness is not well known in the medical community. CCMs can be formed anywhere on the body, but are usually found in the brain or spinal cord. They can cause headaches, nausea, sudden changes in hearing or vision, seizures, tingling in the limbs, paralysis, can be crippling and possibly lead to death.
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