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Contact Us

Use this form to send us comments, questions or suggestions, or to request information for subscriptions or sponsors. SHARE is built by and for New Mexicans, and we rely on you to provide input and content for these pages. Share what matters to you.

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If you need assistance due to a disability or require the form in an alternative format, please contact us and we’ll do our best to accommodate your needs. Tel: 505-289-0558 or email martha@nmhealthcouncils.org

Cerebral Cavernous Malformations (CCM) Support Group
3C's Cavernoma Support Group/

Cerebral Cavernous Malformations (CCM) Support Group

The 3C's Cavernoma Support Group is a local group that meets together in Albuquerque and Santa Fe New Mexico to share their experiences in life with Cerebral Cavernous Malformations (CCM).

CCMs are blood vessel malformations that can occur sporadically or through familial heredity. The most common form of CCM is inherited from a parent having the mutated gene. The illness can be traced back at least sixteen generations to the first Hispanic settlers in the area now know as the Southwest. It is estimated that 1 out of 200 in the Southwest carry the illness, most are asymptomatic. The sporadic forms are found in 1 out of 500 people worldwide. The illness is not well known in the medical community. CCMs can be formed anywhere on the body, but are usually found in the brain or spinal cord. They can cause headaches, nausea, sudden changes in hearing or vision, seizures, tingling in the limbs, paralysis, can be crippling and possibly lead to death.

Details
Ages: All ages 
Genders: All 
Intake Process: Email 
Contact Email: mr.g@3cs.info
Services
Health Support/Education/Insurance Support Groups
Locations
Phone: (505) 490-6162
Geographic Area Served:  Santa Fe County  
Parent Organization
3C's Cavernoma Support Group

The 3C's Cavernoma Support Group is a local group that meets together in Albuquerque and Santa Fe New Mexico to share their experiences in life with Cerebral Cavernous Malformations (CCM).

CCMs are blood vessel malformations that can occur sporadically or through familial heredity. The most common form of CCM is inherited from a parent having the mutated gene. The illness can be traced back at least sixteen generations to the first Hispanic settlers in the area now know as the Southwest. It is estimated that 1 out of 200 in the Southwest carry the illness, most are asymptomatic. The sporadic forms are found in 1 out of 500 people worldwide. The illness is not well known in the medical community. CCMs can be formed anywhere on the body, but are usually found in the brain or spinal cord. They can cause headaches, nausea, sudden changes in hearing or vision, seizures, tingling in the limbs, paralysis, can be crippling and possibly lead to death.

1073 Highland Way
Santa Fe,  NM 87507

Phone: (505) 490-6162
Primary Contact: Tim Gallegos
Contact Email: mr.g@3cs.info
Type: Nonprofit
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